Columbia, SC (WLTX) -- The Cystic Fibrosis Foundation is holding its fourth annual Carolina Kickoff for The Cure, and they need your help.
Through a newborn screening, Lisa Wood found out her now four year old Noah would be diagnosed with Cystic Fibrosis
"You can't control the hand you're delt, but you can control how you play the hand, said Lisa. "So when I took him in for my two week check up, it rocked my world."
The genetic disease requires Noah to wear a special vest twice a day for thirty minutes to clear mucus from his lungs.
"Imagine when you wake up in the morning not being able to take a deep breath, said Lisa. "Noah's identity is not cystic fibrosis, he is a survivor. Everyone in this world has a cross to bare, this just happens to be his cross."
Cystic fibrosis affects 30,000 children and adults in the United States. Since there is no cure, the average life expectancy is 37 years old. But that doesn't sit well with Lisa.
"How I've delt with it is i've jumped into fundraising," said Lisa.
Lisa is on the Cystic Fibrosis Foundation, and is helping organize the fourth annual fundraising tailgate kick off for a cure, hoping to put an end to cystic fibrosis by funding innovation research for trial medicines.
"We have to raise the proper funds to push these trials through, basically what that means for my son is that it could potentially add ten years to his life."
The fundraiser at the Zone in Williams Brice brought in 300 people and raised $41,000 dollars last year. This year hopes to top it with Coach Chad Holbrook as a guest of honor and numerous auction items.
"The bottom line is, parents are not meant to burry their children."
She may not be able to control her son's disease, Lisa believes the Kickoff for a cure tailgate is a step in the right direction.
If you are interested in going to the Kick Off for a cure tailgate, tickets are only $55 dollars. You can get tickets at www.carolinakickoff.com 90% of money raised goes to fund innovative research to find a cure for Cystic Fibrosis.